Asia Pacific Alliance for Rare Disease Organisations (APARDO)

The Asia Pacific Alliance for Rare Disease Organisations (APARDO) is a Singapore-registered, non-profit alliance that brings together patient advocacy organizations, rare disease societies, and rare cancer groups from across the Asia-Pacific region. Founded in 2015, APARDO serves as a regional platform for collaboration, enabling member organizations to share knowledge, strengthen advocacy efforts, and work collectively to improve the lives of people affected by rare diseases and rare cancers.

APARDO's mission is to help member organizations improve treatment outcomes by promoting patient-centered healthcare, advancing research collaboration, and advocating for better policies and access to diagnosis, treatment, and support services. The organization works closely with patient groups, healthcare professionals, researchers, policymakers, and industry partners to address the unique challenges faced by the rare disease community throughout the Asia-Pacific region.

As an umbrella organization, APARDO provides a unified voice for rare disease patients in regional and international forums. Its activities include organizing conferences, educational webinars, policy discussions, and awareness campaigns such as Rare Disease Day, while also offering advocacy resources, training opportunities, and a collaborative network for member organizations. Through these initiatives, APARDO aims to strengthen patient leadership, encourage knowledge sharing, and drive policy improvements that enhance access to diagnosis, treatment, and care for individuals living with rare diseases.