Parent Project Muscular Dystrophy (PPMD)
Description
Parent Project Muscular Dystrophy (PPMD) is a U.S.-based national nonprofit organization dedicated to improving the lives of people affected by Duchenne muscular dystrophy (Duchenne) and Becker muscular dystrophy, and ultimately finding a cure.
Founded in 1994 by parents of children with Duchenne, PPMD has grown into one of the most influential rare disease advocacy organizations in the world, working across research, clinical care, policy, and patient support.
Patient-led advocacy organization that acts as a bridge between:
- Families living with Duchenne
- Researchers and academic institutions
- Pharmaceutical and biotech companies
- Healthcare providers and clinical networks
- Government and regulatory agencies (such as the FDA)
Video About Us
Contact
Website
Phone
Email
Address
Parent Project Muscular Dystrophy 1012 14th Street, NW, Suite 500 Washington, DC 20005
Zip/Post Code
20005
Parent Project Muscular Dystrophy 1012 14th Street, NW, Suite 500 Washington, DC 20005
