Join The Partner Network

Together we're building a stronger global rare disease community.

Rare Disease Watch connects, supports and empowers people living with rare diseases and their families.

By partnering with us, your organisation can reach more people, increase your impact and be part of a global movement for change.

Partnership is FREE, simple and non-exclusive.

We complement your work and help you reach more members of the rare disease community worldwide.

Rare Disease Watched Partner Network

What we offer your organisation

Listing in our directory

Be featured in our international directory of charities, patient groups, hospitals and clinicians.

Organisation profile

Showcase your mission, services and contact details on our website.

Share your knowledge

Publish articles, resources and updates to inform and inspire our community.

Host educational webinars

Lead webinars and events to educate, support and empower patients and caregivers.

Patient & caregiver interviews

Share stories and experiences to raise awareness and promote understanding.

Promote awareness campaigns

We help spread awareness of important campaigns and initiatives.

Share fundraising campaigns

Where appropriate, we can help share your fundraising efforts with our community.

Increase your visibility

Reach a global audience and connect with partners, supporters and new members.

Benefits for your members

Free membership

Your members receive FREE membership to Rare Disease Watch.

Live educational webinars

Access expert-led webinars on a wide range of topics.

Monthly newsletter

Stay informed with our monthly newsletter featuring news, events and opportunities.

Join the lived experience directory

Option to join our directory to connect with others and be seen.

Share your story

Option to share patient stories to inspire, educate and advocate.

Volunteer opportunities

Take part in research, interviews, focus groups and awareness activities.

Be part of a global community

Connect, learn and support one another in a safe and inclusive space.

Why partner?

Stronger Together

By working together, we create a louder voice and greater impact for rare disease communities.

Greater Awareness

We raise awareness, improve understanding and help more people get the support they need.

Better Collaboration

We build connections that lead to better services, research and outcomes.

Global Reach

Together we can reach more people across borders and make a real difference.

Become a Partner

FREE TO JOIN!

Join the Rare Disease Watch Partner Network today. Together, we can make a real difference.

GET STARTED TODAY

Contact us by email:

malvika@rarediseasewatch.com

Rare Disease Watch

Our aim is to make complex information clear, accessible, and trustworthy. With concise reporting and consistent daily coverage, Rare Disease Watch helps professionals, patients, advocates, and families stay informed about what is changing in the rare disease landscape and why it matters.
All Rights Reserved. Rare Disease Watch©. Part of Honnao Ltd, Registered in England and Wales, Company number: 12345498. Trading Address: Highstone House, 165 High Street, Barnet, Herts. EN5 5SU, UK.
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