Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation (CFF) is a leading U.S. nonprofit organisation dedicated to curing cystic fibrosis and helping all people with the disease live long, fulfilling lives. Founded in 1955 by parents of children with CF, it has transformed the outlook for this rare genetic condition through research, care, and advocacy.

Key Activities:

• Funds research into cystic fibrosis treatments and cures.
• Supports clinical trials through a nationwide research network.
• Provides patient education, care resources, and advocacy.
• Accredits and supports specialised CF care centers.
• Works with industry partners to accelerate drug development.

Key Impact:

• Pioneered the venture philanthropy model in rare disease research
• Supported development of CFTR modulator medicines targeting the underlying cause of the disease
• Contributed to transforming cystic fibrosis from a fatal childhood condition into a manageable chronic illness for many patients in high-income countries