Privacy Policy

This Privacy Policy explains how Rare Disease Watch collects, uses, and protects your personal information when you visit our website. We are committed to safeguarding your privacy and ensuring that your personal data is handled responsibly and transparently.

Rare Disease Watch operates in accordance with the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018.

1. Who We Are

Rare Disease Watch is operated by:
Honnao Ltd, Registered in England and Wales, Company number: 12345498. Trading Address: Highstone House, 165 High Street, Barnet, Herts. EN5 5SU, UK.

We act as the Data Controller for information collected through this website.

2. Information We Collect

We collect information in the following ways:

a) Information You Provide Directly

This may include:

• Your name and email address (for subscriptions or contact forms)
• Any information you choose to submit through forms or email
• Voluntary submissions (e.g., article proposals, feedback)

b) Automatically Collected Information

When you visit our website, we automatically collect:

• IP address
• Browser type
• Device information
• Pages viewed
• Time spent on the site
• Cookies and tracking data (see Section 7)

This information helps us understand how visitors use the site.

3. How We Use Your Information

We use your personal data to:

• Provide access to our website and services
• Send emails or newsletters you have signed up for
• Respond to your messages or enquiries
• Improve the website and analyse performance
• Manage subscriptions, comments, or submissions
• Ensure security, integrity, and functionality of the site

We do not use your personal information for automated decision making or profiling.

4. Lawful Basis for Processing

Under UK GDPR, we rely on the following legal bases:

• Consent – when you sign up for newsletters or submit your details
• Legitimate interests – for site analytics, security, and content improvement
• Legal obligation – when required to comply with UK law

5. How We Store and Protect Your Data

We take reasonable measures to protect your information, including:

• Secure servers
• HTTPS encryption
• Access controls
• Data minimisation practices

However, no online service is completely secure, and we cannot guarantee absolute protection.

6. Sharing Your Information

We only share your data when necessary. This may include:

• Email service providers (for newsletter delivery)
• Website hosting providers
• Analytics services
• Legal or regulatory authorities when required by law

We do not sell or rent your personal data.
We do not share personal data with advertisers.

All third parties handling personal data act in compliance with UK GDPR.

7. Cookies and Tracking Technologies

We use cookies to:

• Improve website performance
• Analyse traffic and user behaviour
• Remember your preferences
• Manage login sessions (if applicable)

You can manage or disable cookies through your browser settings.
For more detail, please refer to our Cookie Policy.

8. Your Rights Under UK GDPR

You have the right to:

• Access your personal data
• Request correction of incorrect information
• Request deletion of your data (“right to be forgotten”)
• Object to certain types of processing
• Withdraw consent at any time
• Request data portability
• Restrict processing under certain conditions

To exercise any of these rights, please contact us at:support@rarediseasewatch.com

We aim to respond to all requests within one month.

9. Email Subscriptions and Newsletters

If you sign up for our newsletter:

• You consent to receive occasional email communications
• You may unsubscribe at any time via the link in any email
• Your data will be used solely for delivering these emails

10. International Data Transfers

If personal data is transferred outside the UK, we ensure that adequate safeguards are in place, such as:

• Standard Contractual Clauses
• Approved international frameworks
• Compliance with UK data protection rules

11. Links to External Websites

Rare Disease Watch links to third-party websites for information and reference.
We are not responsible for:

• Their content
• Their privacy practices
• Their data protection policies

We encourage you to review the privacy policies of any external sites you visit.

12. Changes to This Privacy Policy

We may update this Privacy Policy from time to time.
Any changes will be posted on this page with an updated revision date.
Continued use of the website indicates your acceptance of the updated policy.

13. Contact Us

For questions about this Privacy Policy or how your data is handled, please contact:
Email: support@rarediseasewatch.com
Address: Highstone House, 165 High Street, Barnet, Herts. EN5 5SU, UK.