National Tay-Sachs & Allied Diseases Association (NTSAD)
Description
National Tay-Sachs & Allied Diseases Association (NTSAD) leads worldwide efforts to find treatments, therapies, and eventually a cure for Tay-Sachs, Canavan, GM1, and Sandhoff diseases. We drive research, build connections, facilitate collaboration, and nurture community.
Supporting Families is the Center of Everything We Do
We provide more than 750 individuals and families from around the world with connection, resources, and individual support.
For more than 65 years, we’ve built an active and caring community of affected individuals, parents, siblings, grandparents, extended family, and friends. Every year, our Community meets at the Annual Family Conference to reconnect, support, and learn together.
Advancing Research, Providing Education, and Advocating for Our Community
We support research, promote carrier screening and prenatal testing, and raise awareness of rare genetic diseases. Clinicians, researchers, and industry members recognize the pivotal role NTSAD plays in accelerating the development of treatments, therapies, and cures.
Video About Us
Contact
Website
Phone
Email
Address
2001 Beacon Street, Suite 204 Boston,
Zip/Post Code
MA 02135
2001 Beacon Street, Suite 204 Boston,
