

Dr Shara Cohen is a biomedical scientist and science communicator with extensive experience in research, public education, and knowledge translation. Her work focuses on making complex scientific and clinical information accurate, accessible, and genuinely useful for professional, patient, and public audiences.
She co-founded Rare Disease Watch to provide clear, reliable reporting on research developments, regulatory decisions, treatment advances, and funding changes across the rare disease landscape. The platform is designed to support informed decision-making by clinicians, researchers, patients, and families navigating fast-moving and often fragmented information.
In parallel, she leads initiatives in healthcare and workforce development, including Cancer Care Parcel and the Women in STEM Network, applying the same systems-led approach to improving access to information, support, and long-term outcomes.
Across all her work, Shara is committed to clarity, accuracy, and institutional responsibility in how knowledge is created, interpreted, and shared.












