Sickle Cell Disease Association of America
Description
Sickle Cell Disease Association (SCDAA)of America is the only national patient advocacy organisation in the United States dedicated to supporting individuals affected by sickle cell disease, a rare inherited haemoglobinopathy that disproportionately impacts African-American, Hispanic, and South Asian populations. It also serves the estimated 3 million Americans with sickle cell trait.
Founded in 1971, SCDAA works to improve outcomes for the approximately 100,000 people living with sickle cell disease in the US through advocacy, education, and community-based support. It operates a national network of more than 50 community-based organisations, helping to deliver local services and strengthen patient engagement across the country.
SCDAA promotes participation in clinical trials and partnerships with biomedical and pharmaceutical organizations to accelerate the development of new therapies. It also serves as a liaison between researchers and affected communities, ensuring that patient voices inform scientific and policy decisions.
In addition, SCDAA advocates for systemic improvements in care, including universal newborn screening for sickle cell disease, better pain management protocols, and broader efforts to address health disparities and promote equity in care delivery.
Contact
Phone
Address
3700 Koppers Street, Suite 570, Baltimore, MD 21227, USA
Zip/Post Code
21227
3700 Koppers Street, Suite 570, Baltimore, MD 21227, USA
