Sickle Cell Disease Association of America
Description
The Sickle Cell Disease Association of America (SCDAA) is the only US national patient advocacy organisation for the estimated 100,000 Americans living with sickle cell disease and the 3 million with sickle cell trait — a rare inherited haemoglobinopathy disproportionately affecting African-American, Hispanic, and South Asian populations. Founded in 1971, SCDAA operates a national network of 50+ community-based organisations and has played a central role in securing FDA approval of hydroxyurea, L-glutamine (Endari), crizanlizumab (Adakveo), voxelotor (Oxbryta), and the gene therapies exagamglogene autotemcel (Casgevy) and lovotibeglogene autotemcel (Lyfgenia) in 2023. The Association advocates for sickle cell newborn screening, pain management protocols, and health equity.
Contact
Phone
Address
3700 Koppers Street, Suite 570, Baltimore, MD 21227, USA
Zip/Post Code
21227
3700 Koppers Street, Suite 570, Baltimore, MD 21227, USA
