National Ataxia Foundation

The National Ataxia Foundation (NAF) is the US leading non-profit for hereditary and sporadic ataxias — a group of rare progressive neurological conditions affecting balance, coordination, and speech — including Friedreich's ataxia, spinocerebellar ataxias (SCA1–48+), ataxia-telangiectasia, and multiple system atrophy. Founded in 1957, NAF has invested over $20 million in research, operates the Ataxia Global Initiative biobank and CRC-SCA clinical trial consortium, and runs an Ataxia Clinical Research Network spanning 30+ centres. The Foundation supports patients through annual conferences, 60+ local chapters, and provides educational materials for clinicians and families worldwide.