Recent Articles

What Strong and Weak Evidence Mean in Medical Research

Understand strong vs weak evidence in medical research, including evidence hierarchy, bias, and expectation control. A clear guide with relevance to rare diseases and clinical decision-making.

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How Researchers Confirm a Link Between a Gene and a Disease

How researchers prove that a gene causes a disease. A clear guide to the scientific methodology, evidence standards, and validation process used in rare disease research.

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What a New Gene Discovery Actually Means

Gene discoveries are often misunderstood. Learn what a new gene finding really means for diagnosis, research, and patient care in rare diseases.

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FDA's New Breakthrough Pathways for Rare Disease Treatments

A clear overview of the FDA’s new 2025 pathways transforming rare disease drug development, including RDEP, guidance updates, and mechanism based approval.

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How Many Rare Diseases Are There? Understanding the Global Numbers

Learn why estimates place rare diseases between 7,000 and 10,000 worldwide, how definitions differ, and how genomics is reshaping our understanding of prevalence.

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Rare Disease Watch

Our aim is to make complex information clear, accessible, and trustworthy. With concise reporting and consistent daily coverage, Rare Disease Watch helps professionals, patients, advocates, and families stay informed about what is changing in the rare disease landscape and why it matters.
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