Dr Karan Kanhai

Dr. Karan Kanhai, MD, PhD, is a physician and medical researcher dedicated to improving the lives of people affected by rare and complex diseases. With more than 20 years of experience in Oncology, Hematology, and orphan-disease drug development, he has worked at the forefront of clinical research to bring new therapies, better diagnostics, and more personalised treatment strategies to patients who often have limited options.

Throughout his career — including senior leadership roles at global pharmaceutical companies — Dr. Kanhai has focused on translating cutting-edge science into meaningful care. He has designed and guided clinical trials for rare cancers and blood disorders, helped shape international treatment programs, and contributed to peer-reviewed research that advances understanding of rare conditions.

Above all, Dr. Kanhai is committed to listening to patients, advocating for their needs, and ensuring that innovation reaches those who need it most. He believes that every person with a rare disease deserves clarity, hope, and access to the best possible care, and he works to make that a reality every day.

Endpoints in Rare Disease Clinical Trials

Explore how endpoints are defined in rare disease clinical trials, the challenges of small populations, and the growing role of patient-reported outcomes in regulatory decisions.

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Orphan Drugs: From Neglect to Precision Medicine

Although orphan drug legislation and genomic science have transformed the therapeutic landscape for rare diseases, the path from scientific discovery to patient access remains complex and uncertain.

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Rare Disease Watch

Our aim is to make complex information clear, accessible, and trustworthy. With concise reporting and consistent daily coverage, Rare Disease Watch helps professionals, patients, advocates, and families stay informed about what is changing in the rare disease landscape and why it matters.
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