CamRARE (Cambridge Rare Disease Network)

CamRARE is a UK-based registered charity and collaborative network that focuses on improving the lives of people affected by rare diseases and rare conditions.

It acts as a “platform for change”, bringing together patients, families, clinicians, researchers, healthcare organisations, and industry partners to work collectively on solving challenges in rare disease diagnosis, treatment, and care.

CamRARE focuses on:

• Building cross-sector networks (patients, doctors, researchers, industry)
• Supporting patients and families living with rare conditions
• Improving diagnosis pathways and healthcare coordination
• Promoting research collaboration and innovation
• Running major events and forums like RAREsummit and RAREfest
• Increasing public and professional awareness of rare diseases